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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
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You've Had a NARS1 Disorder Diagnosis
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Folleto para comprender el trastorno NARS1
Understanding NARS1 Disorder Teri De Clercq 11/1/25 Understanding NARS1 Disorder Teri De Clercq 11/1/25

Folleto para comprender el trastorno NARS1

Este útil folleto explica qué sucede cuando hay una mutación en el gen NARS1 y cómo eso causa el trastorno NARS1. Disponible en varios idiomas.

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Vídeo - Introducción al trastorno NARS1 y las enfermedades genéticas
Understanding NARS1 Disorder Teri De Clercq 12/5/24 Understanding NARS1 Disorder Teri De Clercq 12/5/24

Vídeo - Introducción al trastorno NARS1 y las enfermedades genéticas

Únase al estudiante de Consejería Genética, Sam, mientras habla sobre el trastorno NARS1: síntomas, genética y perspectivas familiares.

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

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hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
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Denver, CO 80220