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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
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The Rory Belle Foundation
About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Family Resources
Scientific Publications
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
Shop
Ways to Give
Matching Gifts Program
Rare-X
Donate
Folder: About
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About The Rory Belle Foundation
Rory Belle's Story
Our Team
Transparency & Accountability
Folder: NARS1 Disorder
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What is NARS1 Disorder?
You've Had a NARS1 Disorder Diagnosis
FAQs
Access to Free Genetic Testing
Folder: Resources
Back
Family Resources
Scientific Publications
Folder: Research
Back
A Path to a Cure
Our Research Priorities & Opportunities
Research Grants
Events
Blog
Contact
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Boston Family & Researcher Gathering - August 2026
Family Meetings & Events Teri De Clercq 8/30/26 Family Meetings & Events Teri De Clercq 8/30/26

Boston Family & Researcher Gathering - August 2026

Watch all of the presentations and discussions from our Family & Researcher conference in Boston.

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Encuentro Familiar Virtual – Febrero 2026
Family Meetings & Events Teri De Clercq 2/28/26 Family Meetings & Events Teri De Clercq 2/28/26

Encuentro Familiar Virtual – Febrero 2026

Un resumen de la Reunión Familiar Virtual de RBF, que cubre actualizaciones clave sobre la investigación de NARS1, el progreso clínico y lo que significa para las familias.

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Encuentro Familiar Virtual – Febrero 2025
Family Meetings & Events Teri De Clercq 2/12/25 Family Meetings & Events Teri De Clercq 2/12/25

Encuentro Familiar Virtual – Febrero 2025

Vea los aspectos más destacados de la reunión familiar NARS1, febrero de 2025, que reunió a familias, médicos e investigadores para compartir actualizaciones, conocimientos y experiencias de toda la comunidad.

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Encuentro Familiar Virtual – Abril 2024
Family Meetings & Events Teri De Clercq 4/11/24 Family Meetings & Events Teri De Clercq 4/11/24

Encuentro Familiar Virtual – Abril 2024

Vea nuestra primera reunión familiar virtual de abril de 2024

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The Rory Belle Foundation is a public charity recognized as tax-exempt by the IRS under Section 501(c)(3).  EIN: 88-1920584

Contact Us

hello@therorybellefoundation.org
1-720-432-8087

Mailing Address:
8275 E 11th Ave
#200621
Denver, CO 80220